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News:

Group Motto is "Living with CRPS/RSD, NOT Dying with CRPS/RSD!"  ;D

10/14/2011 News: Just a Couple of Mod. Spots left new info below!



  :o  Still on the lookout for... LOOKS like we are down to 1~ Moderator Volunteer, commitment would be for...
 Once a week - On A specific weekday  :o
Plz Group Mail, Rainbow if interested in trying it out...
   
*Training will be provided if you are unsure how to accomplish - Really a piece of cake!!!
*We understand Pain day commitment maybe an issue.  We plan to set-up backups once we have a full week day schedule.



   :D  :)  Group Welcomer to start over the next few weeks!  Thanks Butterfly, time to clean up my letter LOL!
  Once it is completed I will post one last time and then she will take over Personal Mailing each member.
I am so glad that this is taken care of and that we are closer to getting the Mod spots filled!  :D  :)   

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Author Topic: Information on Hyperbaric Oxygen Therapy  (Read 1244 times)

Rainbow

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Rainbow

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Re: Information on Hyperbaric Oxygen Therapy
« Reply #1 on: June 02, 2009, 19:19:57 »

A little on Cost via GoJo


Thank you for posting this. While it is very interesting as with most of us it is cost prohibitive. There is a clinic in my area that offers HBOT and he told me to expect approx. $4000.00 of initial out of pocket expense to get started and I would need "maintenance" treatments periodically at $200.00 per hr. which would lead to an undetermined amount of additional expense. While researching this option I discovered that you could purchase your own "chamber" for about $12000.00 and this is down in the recent years from around $16000.00. Let us hope that the beurocrats will take our cause to heart and consider this as an option of treatment. Blessings to one and all, gojogo

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Rainbow

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Re: Information on Hyperbaric Oxygen Therapy
« Reply #2 on: June 03, 2009, 23:16:24 »

 http://www.hbotofaz.org/resources/patients/complex_regional_pain_syndrome.htm

This article is over the allowed length iof 20,000 characters so I could not post the text sorry all have to visit the link  :)
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Rainbow

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Re: Information on Hyperbaric Oxygen Therapy
« Reply #3 on: June 03, 2009, 23:16:59 »

As far as I know the insurances will not cover, I fought for it and the attnys said that they did not think that I would get an allowance for it.  That was after multiple docs trying to get it approved

Hugs

Rain
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Rainbow

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Re: Information on Hyperbaric Oxygen Therapy
« Reply #4 on: June 03, 2009, 23:17:24 »

I know that I have been sticking to this one for awhile, but there is so much!  :)


http://www.majidali.com/the_oxygen_view_of_pain.htm
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Rainbow

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Re: Information on Hyperbaric Oxygen Therapy
« Reply #5 on: May 16, 2010, 02:38:10 »

Hi Everyone,

I just had hyperbaric oxygen treament a few weeks ago. It made me feel better for two days & really increased the effectiveness of my meds during that time, though that's about it. I'm always looking for new treatments to get rid of the monster (i.e., RSD), so I promise I'll report the results to all of you when I get my treatments. I have Ketamine infusions scheduled in less than a month and am ready to kick the RSD firmly in its butt.

How is everyone doing in this weather? I'm in PA, so I am suffering quite a bit right now. I kind of expected this, but not this bad. It feels like someone is cutting my big toe off - I hate this disease so much. Do any of you have any recommendations on how to shut up this monster in the cold weather? It just doesn't stop; it races around my body. This is the coldest it's been since I got sick. I am going to call my MD to see if I can increase my meds while it is this cold. I can't just sit back & tolerate it. Well, any tips you have would be greatly appreciated. God bless all of you right now - I think the battle is rising higher for all of us right now. Please take care & stay warm.
Kind regards to all, Linda
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gojogo

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Re: Information on Hyperbaric Oxygen Therapy
« Reply #6 on: May 23, 2010, 19:22:17 »

 :)  Also for those interested, I talked to someone at BC/BS of Alabama abt. this procedure being covered and they told me to call our state legislators and see if they could see some changes brought to life.  The un-named insurance person told me that the companies have lobbyists working the houses of legislature to keep the procedures from being covered.  It is all about the money, the insurance company does not want to cover them so they lobby to keep it from being added to the "covered procedures" list.  'Tis sad but none the less true.  Blessings and peace, gojogo.
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Rainbow

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Re: Information on Hyperbaric Oxygen Therapy
« Reply #7 on: May 24, 2010, 02:07:14 »

Somehow what I have learned about the overseers of the Insurances and Procedures, this does not surprise me at all.  If you have Dish network, watch some of the UOW TV and  UCLA TV programs on chronic pain.  It will really make you think when you hear what some of these doctors teach and what docs are now professors because the system is so messed up.  I really cannot state my true professional opinion here, as I believe Patches would have my hide... catch me off on the side one of these days  ;)
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